Alpha-1 Foundation
Alpha-1 Foundation is a national nonprofit for people affected by Alpha-1 Antitrypsin Deficiency. It helps with a free patient phone line, support groups, peer guides, genetic counseling, specialist searches, education events, research registry enrollment, and scholarships.
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The Alpha-1 Foundation offers a patient information line operated by Cathey Henderson, Director of Community Programs, who answers questions on a range of Alpha-1 related topics. This program... Main Services health education navigating the system help hotlines Serving adults young adults teens seniors genetic disorder individuals families with children
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What they offer 11
- Recently verified· Jun 29
Peer Guide ProgramProgram
Connects a newly diagnosed person or someone affected by Alpha-1 with a trained peer who has similar experience.
- Recently verified· Jun 29
Alpha-1 Support Group NetworkProgram
Nationwide virtual and in-person support groups offer support, education, and information for people affected by Alpha-1.
- Recently verified· Jun 29
Genetic Counseling ProgramService
Free, confidential phone-based genetic counseling is provided through the University of Florida for Alpha-1 questions.
- Recently verified· Jun 29
Find an Alpha-1 SpecialistService
An online directory helps people find doctors who specialize in Alpha-1 lung or liver care for adults or children.
- Recently verified· Jun 29
Patient Information LineService
Free phone support for people affected by Alpha-1, including help with testing, diagnosis questions, peer guides, specialists, family testing, and children with Alpha-1.
- Recently verified· Jun 29
Alpha-1 Educational ScholarshipsGrant
Scholarships help Alphas and immediate family members pay for approved post-high-school education in the United States.
- Recently verified· Jun 29
Alpha-1 Research RegistryProgram
A confidential registry lets people with Alpha-1 and carriers help research and learn about clinical trial opportunities.
- Recently verified· Jun 29
A1F Education DaysEvent
One-day regional and virtual education events provide medical updates, local resources, expert talks, and community connection.
- Recently verified· Jun 29
Oxygen Travel FundGrant
The fund helps Alphas in financial need with oxygen and equipment for travel to Alpha-1 educational events.
- Recently verified· Jun 29
A1F Fred C. Walsh Speaker BureauProgram
The speaker bureau connects organizations with trained speakers who share real Alpha-1 patient and caregiver experiences for education, advocacy, and research-related events.
- Recently verified· Jun 29
Alpha-1 Foundation Grants Award ProgramGrant
Research grants fund studies meant to improve health for people with AAT Deficiency and move toward a cure.
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