Angelman Syndrome Foundation (ASF)
Angelman Syndrome Foundation is a national nonprofit that supports people with Angelman syndrome and their families. It helps with education, family support, free counseling, clinic referrals, research updates, and community events.
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The ASF Family Resource Team is a group of experts in their respective fields helping individuals and families experiencing challenges faced by AS by connecting them with much needed resources. We... Main Services navigating the system support network one-on-one support Other Services support network Serving all ages genetic disorder individuals families caregivers parents
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What they offer 11
- Not yet verified
Family Resource TeamService
- Recently verified· Jun 26
Counseling ServicesService
ASF offers free counseling for Angelman families in the United States, including help with caregiver stress, marital stress, substance abuse issues, self-esteem, and stress management.
- Recently verified· Jun 26
ASF Family ChampionsProgram
Volunteer family members connect with other Angelman families to share experience, knowledge, and peer support.
- Recently verified· Jun 26
Future Care Planning SeriesProgram
A planning series with on-demand webinars, resources, and Q&A sessions about powers of attorney, ABLE accounts, cash flow, and estate planning.
- Recently verified· Jun 26
ASF Clinic NetworkService
ASF lists clinics and providers with experience caring for people with Angelman syndrome and helps families find specialized medical care.
- Recently verified· Jun 26
Resource LibraryService
ASF provides online resources for newly diagnosed families, adults, family support, advocacy, school, medical care, respite, safety, and other topics.
- Recently verified· Jun 26
ASF Family Conference and Research SymposiumEvent
A national conference with workshops, seminars, research updates, care information, community connection, and celebration.
- Recently verified· Jun 26
Estate Planning Essentials Q&AEvent
A live Q&A session in the Future Care Planning Series about estate planning and legal options such as guardianship.
- Recently verified· Jun 26
Cash Flow Management Q&AEvent
A live Future Care Planning Q&A about managing family finances and resources across a loved one's life.
- Recently verified· Jun 26
Powers of Attorney Q&AEvent
A live Future Care Planning Q&A about powers of attorney and legal authority for family planning.
- Recently verified· Jun 26
Angelman StrongEvent
Annual May events such as walks, runs, tournaments, gatherings, and awareness campaigns that bring the Angelman community together.
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