Aplastic Anemia & MDS International Foundation (AAMDSIF)
Aplastic Anemia & MDS International Foundation is a national nonprofit for people with aplastic anemia, MDS, PNH, and related bone marrow failure diseases. They help patients and families with a helpline, peer support, virtual support groups, education, specialist-finding help, conferences, webinars, and a PNH travel assistance fund.
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The PNH Patient Travel Assistance Fund provides financial assistance to U.S. based PNH (Paroxysmal Nocturnal Hemoglobinuria) patients for up to $800 in travel assistance per patient, per year, to... Main Services help pay for food help pay for healthcare help pay for gas help pay for transit Serving all ages on-treatment chronic illness individuals families low-income caregivers
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What they offer 6
- Recently verified· Jun 26
Peer Support NetworkProgram
Matches patients, caregivers, and family members with trained volunteers for one-to-one support by phone or email.
- Recently verified· Jun 26
Patient and Family HelpLineService
Information specialists answer questions about aplastic anemia, MDS, PNH, and related bone marrow failure diseases and can provide support and referrals.
- Recently verified· Jun 26
PNH Patient Travel Assistance FundService
Provides up to $800 per year in travel assistance for U.S.-based PNH patients to see a PNH specialist or get a second opinion.
- Recently verified· Jun 26
Patient and Family Virtual Support GroupsEvent
Virtual support groups connect people affected by aplastic anemia, MDS, PNH, and related diseases with peers.
- Recently verified· Jun 26
Patient and Family ConferencesEvent
Free conferences around the United States offer expert talks and connection for patients, families, caregivers, and health professionals.
- Recently verified· Jun 26
Patient and Family WebinarsProgram
Webinars bring medical experts to patients and families online, with hundreds of recordings available to watch any time.
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