Chordoma Foundation
Chordoma Foundation helps people affected by chordoma, a rare cancer, anywhere in the world. It offers free patient navigation, peer support, online community groups, doctor and treatment information, and some travel reimbursement for eligible clinical trials.
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Chordoma Foundation's Peer Connect program provides confidential peer-to-peer support that connects anyone touched by chordoma with another person whose experiences with chordoma are similar. All... Main Services support network one-on-one support peer support virtual support Other Services navigating the system Serving all ages recently diagnosed on-treatment post-treatment cancer individuals families limited english caregivers head & neck cancer
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What they offer 9
- Recently verified· Jun 26
Patient Navigation ServiceService
Patient Navigators give free, confidential one-on-one guidance about chordoma, treatment guidelines, doctors, resources, insurance appeals, lodging, travel, and financial assistance.
- Recently verified· Jun 26
Peer ConnectService
Peer Connect matches people touched by chordoma with trained volunteer Peer Guides who have similar lived experience.
- Recently verified· Jun 26
Chordoma ConnectionsProgram
Chordoma Connections is a private online community where patients and loved ones share information, message each other, join groups, and access resources.
- Recently verified· Jun 26
Virtual Support Groups and MeetupsProgram
The foundation offers professionally facilitated and community-led virtual support groups for chordoma patients, survivors, caregivers, young adults, and some international communities.
- Recently verified· Jun 26
Clinical Trial Assistance ProgramGrant
This program reimburses eligible travel-related costs so chordoma patients can take part in qualifying clinical trials.
- Recently verified· Jun 26
Doctor DirectoryService
The Doctor Directory lists doctors around the world who routinely treat chordoma patients, based on information from patients and physicians.
- Recently verified· Jun 26
International AmbassadorsProgram
Volunteer Ambassadors help chordoma patients and families outside the United States connect with country-specific and local resources.
- Recently verified· Jun 26
2026 International Chordoma Research WorkshopEvent
A research meeting for scientists, clinicians, and partners to share chordoma research and plan future treatment work.
- Recently verified· Jun 26
2026 International Chordoma Community ConferenceEvent
An in-person community conference for people affected by chordoma to connect, learn, and take action.
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