Cystic Fibrosis Research Institute (CFRI)
Cystic Fibrosis Research Institute is a nonprofit that supports people affected by cystic fibrosis while funding research and sharing education. It helps through counseling financial support, online peer groups, wellness classes, retreats, patient assistance information, advocacy, and CF education events.
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The Counseling Support to Nationwide CF Community program assists individuals and families struggling with cystic fibrosis. Through the counseling support program, participants will be provided... Main Services counseling family counseling individual counseling Serving adults young adults teens children seniors chronic illness individuals low-income uninsured underinsured More Less caregivers
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What they offer 12
- Recently verified· Jun 26
Counseling Support to Nationwide CF CommunityService
CFRI provides financial support for up to six individual therapy sessions per year for people with CF and their family members.
- Recently verified· Jun 26
Adults with CF Online Support GroupProgram
A monthly peer support group for adults living with cystic fibrosis.
- Recently verified· Jun 26
Support GroupsService
Monthly online support groups for parents of children with CF and for parents, spouses, or partners of adults with CF.
- Recently verified· Jun 26
CF Teen ConnectionProgram
A virtual hangout where teens with CF can meet peers, learn, and connect in a facilitated group.
- Recently verified· Jun 26
Bereavement Support GroupProgram
A monthly group for people grieving the loss of someone with CF.
- Recently verified· Jun 26
Adults with CF Post-Transplant Support GroupProgram
A monthly group for adults with CF who have received a double lung transplant.
- Recently verified· Jun 26
Adults with a Late CF Diagnosis Support GroupProgram
A monthly online group for adults diagnosed with cystic fibrosis later in life.
- Recently verified· Jun 26
Those Who Cannot Use CFTR Modulators Support GroupProgram
A monthly support group for people with CF who cannot benefit from current CFTR modulators because of mutation type, side effects, or other reasons.
- Recently verified· Jun 26
Conocimiento y ConexiónProgram
A Spanish-speaking virtual CF community group for adults with CF and parents or caregivers of people with CF.
- Recently verified· Jun 26
CF Wellness ClassesProgram
Free drop-in online wellness classes for the CF community, including movement and strength classes.
- Recently verified· Jun 26
CFRI's 39th National CF Education Conference: A Wave of ProgressEvent
CFRI’s annual CF education conference covers CF research, cancer, reproductive health, gene therapy, sleep, mental health, exhibits, and community events.
- Recently verified· Jun 26
CF Adult RetreatEvent
A retreat for adults with CF and their family or friends, with education, coping skills, exercise, arts and crafts, and support groups.
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