GBS/CIDP Foundation International
GBS/CIDP Foundation International is a global nonprofit for people affected by Guillain-Barre Syndrome, CIDP, MMN, and related conditions. It helps patients, caregivers, and medical professionals with education, peer connection, resource navigation, advocacy, research updates, and lists of specialty care centers.
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Monthly Zoom Coffee Chats are a way to stay connected, find support, and find the answers that many community members need during challenging times. Coffee chats are a casual way to check in with... Main Services support network peer support virtual support Serving chronic illness individuals caregivers young adults adults seniors limited english
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What they offer 11
- Recently verified· Jun 29
Monthly Zoom Coffee ChatsService
Virtual coffee chats let patients, caregivers, and community members check in, ask questions, and get peer support.
- Recently verified· Jun 29
Community ForumService
An online forum where people living with or caring for someone with GBS, CIDP, or MMN can share experiences and ask questions.
- Recently verified· Jun 29
Ask the Health NavigatorService
The Health Navigator helps patients find resources for insurance, financial help, disability needs, mental health, and care planning.
- Recently verified· Jun 29
Financial Assistance & Insurance Resources PortalService
The portal lists U.S.-based medication, IVIG, insurance, medical bill, utility, food, housing, legal, senior, parent, and veteran resources.
- Recently verified· Jun 29
Centers of Excellence DirectoryService
The Foundation lists medical centers that meet its standards for GBS, CIDP, MMN, and related neuropathy expertise.
- Recently verified· Jun 29
Research & Clinical Trials DirectoryService
The directory lists current research studies and clinical trials for GBS, CIDP, MMN, and related conditions.
- Recently verified· Jun 29
Patient RegistryProgram
Patients and primary caregivers can share de-identified survey information to help researchers understand rare patient experiences.
- Recently verified· Jun 29
Care Partner CommunityProgram
Care partners can find guidance, self-care resources, and links to caregiver support options.
- Recently verified· Jun 29
Coffee Chat: Adaptive DevicesEvent
A virtual coffee chat focused on adaptive devices for the GBS, CIDP, and MMN community.
- Recently verified· Jun 29
Speaker Series: Estrangement & Isolation Chronic IllnessEvent
A speaker series session about how chronic illness can affect emotional health, relationships, and isolation.
- Recently verified· Jun 29
Walk & RollEvent
Walk & Roll events bring the community together for awareness, connection, and support for GBS, CIDP, and MMN work.
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