HLH Heroes Foundation
HLH Heroes Foundation is a U.S. nonprofit based in St. Louis that supports people and families affected by HLH, a rare and life-threatening immune disorder. They help through financial assistance, hospital care packages, family connections, education, and awareness events.
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HLH Heroes provides financial support to individuals and families impacted by HLH.This program provides:- Financial assistance Main Services financial assistance Serving all ages chronic illness individuals families
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What they offer 6
- Recently verified· Jul 1
Financial SupportService
Financial assistance is available for individuals and families impacted by HLH in the United States.
- Recently verified· Jul 1
Hospital Care PackagesService
The foundation lists hospital care packages as one of its support initiatives for people facing HLH treatment.
- Recently verified· Jul 1
HLH Family Connection SupportService
Families can contact the foundation to connect with another HLH warrior family.
- Recently verified· Jul 1
HLH Education and Resource LinksProgram
The foundation shares curated HLH information, care-team questions, physician finder links, clinical trial links, registry information, and scholarship resources.
- Recently verified· Jul 1
INTO-HLH Registry AwarenessProgram
HLH Heroes Foundation encourages people with HLH and family members to learn about and join the INTO-HLH disease registry.
- Recently verified· Jul 1
5th Annual Virtual 5K/Fun Run 2026Event
A virtual 5K fundraiser supports families and individuals impacted by HLH and can be completed from anywhere.
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