Myositis Support and Understanding (MSU)
Myositis Support and Understanding (MSU) is a national patient-led nonprofit for people living with myositis and their care partners. It helps with education, online support groups, advocacy, research opportunities, and a financial assistance program for eligible U.S. patients.
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The Patient Financial Assistance Program provides financial assistance for medical bills,emergency household expenses, and mobility devices. Requests for assistance are evaluated on a case-by-case... Main Services help pay for healthcare help pay for housing help pay for utilities Serving all ages chronic illness individuals families low-income
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What they offer 12
- Recently verified· Jun 29
Wednesday Evening Myositis Support GroupEvent
A live video support group for myositis patients.
- Recently verified· Jun 29
Inclusion Body Myositis (IBM) Support GroupEvent
A virtual support group hosted by patients with IBM.
- Recently verified· Jun 29
Myositis Patient Get Well Card ProgramService
MSU sends get well cards to myositis patients who are hospitalized or facing a difficult time.
- Recently verified· Jun 29
Patient Financial Assistance ProgramProgram
Needs-based assistance can help eligible U.S. myositis patients with medical bills, emergency household expenses, mobility devices, and approved medical travel.
- Recently verified· Jun 29
Myositis Support OptionsProgram
MSU offers closed Facebook groups and monthly video support sessions for patients, caregivers, care partners, family, and friends.
- Recently verified· Jun 29
Myositis Education ProgramsProgram
MSU shares plain-language myositis articles, webinars, videos, patient stories, and educational materials.
- Recently verified· Jun 29
Myositis AdvocacyProgram
MSU advocates for myositis patients on policy, access to therapies, insurance, disability, ADA accommodations, and rare disease awareness.
- Recently verified· Jun 29
Clinical Trial Matching ProgramProgram
MSU provides clinical trial matching through Antidote Technologies so myositis patients can search for trials by diagnosis and travel distance.
- Recently verified· Jun 29
Myositis Support Gets Moving on ClubhouseEvent
A weekly Clubhouse support room about movement, goals, barriers, and adapting with myositis.
- Recently verified· Jun 29
Weekly Sunday Clubhouse SupportEvent
A weekly Clubhouse support space for myositis patients and caregivers.
- Recently verified· Jun 29
Women with Myositis Virtual Support GroupEvent
A monthly Zoom support group for women living with any type of myositis.
- Recently verified· Jun 29
Young Adults with Myositis - MSU YA Collective Power HourEvent
A private real-time video support session for young adults living with myositis.
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