National MPS Society
Serves Atlanta by phone or online (based in Durham, NC).
(877) 677-1001 · more numbers below
The National MPS Society helps people and families living with MPS and ML, which are rare genetic diseases. It gives grants, scholarships, and travel help, and offers one-on-one support to newly diagnosed families. Membership is free for people with MPS or ML and their families.
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What they offer 14
- Info refreshed from their website· Oct 13
Educational Resources and Syndrome BookletsService
Booklets and guides about each type of MPS and ML for families, caregivers, and health care workers. Many are also in Spanish.
- Info refreshed from their website· Oct 13
Free MembershipProgram
Joining the Society is free for people with MPS or ML, their families, and friends. Members get welcome guides, a newsletter, member and doctor directories, and access to its support programs.
- Info refreshed from their website· Oct 13
Pathways ProgramProgram
A free program for families with a new MPS or ML diagnosis. It gives information, one-on-one support, and ways to meet other families during the first year.
- Info refreshed from their website· Oct 13
VolunteeringProgram
People can give time at conferences, run/walk events, office tasks, committees, fundraisers, and spring visits with lawmakers. Sign up through the form on the volunteer page.
Events 1
Grants
- Info refreshed from their website· Oct 13
Bereavement Expense Program
Gives money to families who have lost a loved one with MPS or ML. Requests are reviewed privately by a Society committee.
- Info refreshed from their website· Oct 13
Continuing Education Scholarship Program
Scholarships for college or other schooling after high school. Full-time students get $1,000 and part-time students get $500. One larger scholarship goes up to $5,000.
- Info refreshed from their website· Oct 13
Extraordinary Experiences
Grants of up to $1,000 so a person with MPS or ML can take part in an experience that enriches life.
- Info refreshed from their website· Oct 13
Family Assistance Program
Grants of up to $3,000 for special equipment or medical aids that insurance does not cover. The family pays 10 percent.
- Info refreshed from their website· Oct 13
Family Conference Scholarship Program
Helps families and individuals pay to attend the Society's yearly family conference, including hotel, registration, and travel. Newly diagnosed families and first-time attendees go first.
- Info refreshed from their website· Oct 13
Journey Assistance Program
Grants of up to $500 to help families buy things that make daily life easier. The grant covers up to 40 percent of the price.
- Info refreshed from their website· Oct 13
Medical Travel Assistance Program
Pays back up to $550 a year for travel to out-of-town medical visits that are more than 125 miles from home and do not repeat. The visit must be approved before you go.
- Info refreshed from their website· Oct 13
Regional Social Events Grants
Grants of up to $750 a year to help pay for regional get-togethers for MPS and ML families.
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