The Association for Frontotemporal Degeneration (AFTD)
The Association for Frontotemporal Degeneration, or AFTD, is a national nonprofit that helps people affected by frontotemporal degeneration. Its HelpLine, website, grants, support groups, webinars, and events help people with FTD, caregivers, families, and professionals find information, emotional support, and resources.
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Staffed by social workers, the AFTD HelpLine is here to answer your frontotemporal degeneration (FTD) questions and support you. This program provides:- Help navigating the system- Understanding... Main Services understand disability navigating the system support network one-on-one support virtual support health education Serving adults young adults teens seniors mentally incapacitated individuals families caregivers spouses
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What they offer 7
- Recently verified· Jun 26
AFTD HelpLineService
Social workers answer FTD questions, explain FTD subtypes, help with new diagnosis concerns, connect callers to support and resources, and provide emotional support.
- Recently verified· Jun 26
Find Support Near You and Support GroupsProgram
AFTD lists FTD support groups and diagnostic centers by state and offers online support options for people affected by FTD.
- Recently verified· Jun 26
Comstock Respite GrantsGrant
AFTD offers respite grants up to $500 per family to help full-time, unpaid care partners care for their own well-being.
- Recently verified· Jun 26
Comstock Quality of Life GrantsGrant
AFTD offers $500 grants to people living with FTD to help pay for goods, services, or supports that improve quality of life.
- Recently verified· Jun 26
Support for Families with Kids and TeensProgram
AFTD provides child- and teen-focused FTD education materials and sponsors a Zoom support group for parents caring for a spouse or partner with FTD while raising school-aged children.
- Recently verified· Jun 26
Walk for FTDEvent
AFTD's Walk for FTD raises awareness and funds for FTD support, research, and family services, with in-person and virtual walker options.
- Recently verified· Jun 26
AFTD Federal Advocacy WebinarEvent
AFTD advertises a webinar on its federal advocacy efforts and Campaign for Change.
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