The Twin to Twin Transfusion Syndrome Foundation
The Twin to Twin Transfusion Syndrome Foundation helps families facing TTTS and related conditions called TAPS, SIUGR, and TRAP. It gives education, emotional support, phone help, support groups, connections to specialists, and some financial help for treatment, NICU travel, bereavement, bed rest, and other needs.
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The Twin to Twin Transfusion Syndrome Foundation is here to provide you with educational, emotional, and financial support to help in understanding twin to twin transfusion syndrome and the... Main Services help pay for healthcare financial assistance navigating the system support network peer support virtual support Serving adults young adults teens grieving recently diagnosed on-treatment post-treatment pregnant families mothers
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What they offer 12
- Not yet verified
Twin to Twin Transfusion Syndrome Support NetworkService
- Recently verified· Jun 26
World TAPS, SIUGR, and TRAP DaysEvent
The foundation lists special awareness days for TAPS, SIUGR, and TRAP, which it describes as forms related to TTTS.
- Recently verified· Jun 26
Support GroupsProgram
The foundation connects families to pregnancy and diagnosis support groups, including groups for TTTS, TAPS, SIUGR, and TRAP.
- Recently verified· Jun 26
Awareness MonthEvent
The foundation lists an awareness month as one of its special events for public education and support.
- Recently verified· Jun 26
World TTTS DayEvent
The foundation lists World TTTS Day as a special awareness event for twin to twin transfusion syndrome.
- Recently verified· Jun 26
Diagnosis and Pregnancy SupportService
Immediate educational, emotional, and financial support for families at risk for or diagnosed with TTTS, TAPS, SIUGR, or TRAP.
- Recently verified· Jun 26
Circle of Care GrantsGrant
Grants help financially needy families reach treatment and cover related needs such as bereavement, bed rest, nutrition, and NICU travel.
- Recently verified· Jun 26
Medical Advisory BoardProgram
Medical specialists answer questions about TTTS, TAPS, SIUGR, TRAP, and treatment options.
- Recently verified· Jun 26
NICU SupportProgram
The NICU program gives education, emotional support, and NICU care packages for parents whose twins need high-risk nursery care.
- Recently verified· Jun 26
Special Needs SupportService
Support for families with children affected by cerebral palsy or other neurological, developmental, or physical disabilities.
- Recently verified· Jun 26
Compassionate Deliveries and Bereavement SupportProgram
Emotional support, a planning booklet, and bereavement care packets for families facing multiple-birth loss during pregnancy, birth, NICU, or after coming home.
- Recently verified· Jun 26
Placental Analysis ProtocolProgram
The protocol helps pathologists collect relevant data and confirm TTTS, TAPS, SIUGR, or TRAP.
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