ProgramHealth
DTRF Patient Registry and Natural History Study
Offered by Desmoid Tumor Research Foundation
Recently verified· Jun 26From AI-assisted
An online registry collects patient survey data about diagnosis, treatment, disease progression, and quality of life to support research.
Plain-language summary, written with AI
Cost & format
free · Online
Who this is for
People who have had a desmoid tumor; caregivers or guardians may register and complete surveys for someone else.
How to apply
Create an account at DTRF.iamrare.org and complete online surveys; questions can be sent to registry@dtrf.org.
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