CurePSP
CurePSP is a national nonprofit that helps people living with progressive supranuclear palsy, corticobasal degeneration, and multiple system atrophy, plus their families and care partners. It offers support groups, education, a help line, care-center referrals, respite grants, brain donation support, and research and advocacy programs.
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The CurePSP Quality of Life Respite Grant provides direct support to caregivers of those living with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system... Main Services in-home support relief for caregivers Serving all ages physical disability chronic illness individuals families caregivers
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What they offer 12
- Recently verified· Jun 29
Quality of Life Respite GrantService
Provides 100 hours of professional agency-based in-home respite care, paid up to $40 per hour directly to the approved home-care agency.
- Recently verified· Jun 29
Hope Line and Information SupportService
CurePSP answers questions, connects people to resources, and offers support by phone or email.
- Recently verified· Jun 29
Online Support GroupsProgram
Virtual groups give people and families living with PSP, CBD, or MSA a safe place to connect and learn from others.
- Recently verified· Jun 29
Regional Support and Peer SupportProgram
Regional peer supporters and local support groups share community connection, daily living tips, and local resources.
- Recently verified· Jun 29
CurePSP Discussion Group on FacebookProgram
A CurePSP-created discussion group helps community members share questions, tips, resources, and support.
- Recently verified· Jun 29
Music Therapy GroupProgram
A virtual monthly music therapy group supports connection, motor function, physiological outcomes, psychosocial support, and emotional expression.
- Recently verified· Jun 29
Chair Yoga GroupProgram
A virtual chair yoga group helps participants connect with their bodies and work on balance, flexibility, and proprioception.
- Recently verified· Jun 29
Educational ResourcesService
CurePSP offers downloadable and orderable education materials, audiobooks, brochures, clinical care guides, and adaptive equipment suggestions.
- Recently verified· Jun 29
Centers of Care NetworkProgram
CurePSP's Centers of Care network connects people with PSP, CBD, or MSA to specialized medical centers for diagnosis, treatment, support, outreach, and research.
- Recently verified· Jun 29
Brain Donation Assistance ProgramProgram
CurePSP helps families plan brain donation so researchers can study PSP, CBD, MSA, and related neurodegenerative diseases, and the next of kin can receive a pathology report.
- Recently verified· Jun 29
Louder than Words Voice ProgramProgram
In partnership with ElevenLabs, CurePSP offers free voice banking and voice cloning tools for eligible people with PSP or CBD.
- Recently verified· Jun 29
CARES GrantsGrant
CurePSP funds collaborative care projects through its Centers of Care network to study and address unmet care needs for atypical parkinsonism.
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