Global Foundation for Peroxisomal Disorders
The Global Foundation for Peroxisomal Disorders helps people and families affected by peroxisomal disorders, including Zellweger spectrum disorders and related single-enzyme disorders. It offers family support, private online support groups, education, equipment exchange, research updates, advocacy, and awareness events.
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The Global Foundation for Peroxisomal Disorders provides supportive services for parents and families members whose child or family member was diagnosed with a Peroxisomal Disorder. This program... Main Services support network one-on-one support support groups Serving all ages grieving genetic disorder individuals families single parent fathers parents
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What they offer 12
- Not yet verified
Support GroupsService
- Recently verified· Jun 29
GFPD Family DirectoryProgram
A secure directory that helps GFPD connect families and adult patients to support, resources, research opportunities, updates, and events.
- Recently verified· Jun 29
PAUSE with the GFPDEvent
A worldwide awareness day to honor families who have lost a child or are living with a peroxisomal disorder.
- Recently verified· Jun 29
Pound the Pavement for PeterEvent
An annual GFPD fundraiser held in Atlanta, Georgia.
- Recently verified· Jun 29
GFPD Parent Support GroupService
A private online group where parents and guardians of people with peroxisomal disorders can connect and give peer support.
- Recently verified· Jun 29
GFPD Dads GroupService
A private online support space for fathers of people with peroxisomal disorders.
- Recently verified· Jun 29
GFPD Adult Self Advocate Patient Support GroupService
A private online support group for adults living with peroxisomal disorders.
- Recently verified· Jun 29
GFPD Extended Family Support GroupService
A private online group for adult extended family members of people with peroxisomal disorders.
- Recently verified· Jun 29
GFPD AMACR Deficiency Support GroupService
A private support group for people with AMACR deficiency and parents of people with AMACR deficiency.
- Recently verified· Jun 29
GFPD Remembrance and Bereavement SupportService
A private support group and contact point for bereaved parents and guardians.
- Recently verified· Jun 29
Family-to-Family CommunitiesProgram
A closed private group for families enrolled in GFPD Family-to-Family Communities sessions to stay connected between virtual meetings.
- Recently verified· Jun 29
Equipment Exchange ProgramProgram
GFPD matches families and patients who need medical equipment or supplies with other families who have free items to share.
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