I AM ALS
Serves Atlanta by phone or online (based in Washington, DC).
(866) 942-6257
C. It helps people living with ALS, their caregivers, and loved ones. It offers free calls with a support specialist, online support groups, and peer mentors, plus guides on treatments, clinical trials, and veterans benefits. It also organizes volunteers to push for ALS research funding and policy change.
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What they offer 13
- Info refreshed from their website· Oct 13
ALS Support GroupService
A monthly online group for veterans living with ALS to share experiences and get emotional support.
- Info refreshed from their website· Oct 13
ALS Support TeamService
You are matched with a personal ALS Support Specialist by phone or form. They listen, connect you to practical resources, share medical and research information, and check in with you over time.
- Info refreshed from their website· Oct 13
Bereavement Support GroupService
A monthly online group for people who lost a loved one to ALS. It helps people work through grief and other feelings.
- Info refreshed from their website· Oct 13
Caregiver Support GroupService
A monthly online group for people who are the main caregivers of someone with ALS. It focuses on the worries and stresses of giving care.
- Info refreshed from their website· Oct 13
Loved Ones Support GroupService
A monthly online group for family and friends of someone living with ALS. It helps people work through their own feelings.
- Info refreshed from their website· Oct 13
Peer Mentor and Peer Support Specialist ProgramProgram
You can be matched one-on-one with a trained peer who has lived with ALS. Mentors give emotional and social support. Peer Support Specialists also share information and help with referrals. People impacted by ALS can also apply to become a mentor or specialist.
- Info refreshed from their website· Oct 13
Scribes of Strength: Our ALS StoriesProgram
A writing group where people in the ALS community share their stories in writing to teach others and raise awareness.
- Info refreshed from their website· Oct 13
Treatments and Clinical Trials ResourcesService
Online pages explain current ALS treatments, how to look into clinical trials, expanded access, and Right to Try. They link to ALS Signal, a dashboard of clinical research. The Support Team can help you find trials.
Events 2
- Info refreshed from their website· Jun 29
I AM ALS Community Teams and Advocacy Meetings
RepeatsOnline
Recurring virtual teams work on legislative advocacy, clinical trials access, veterans issues, outreach, writing, and ALS awareness.
- Info refreshed from their website· Jun 29
Ask Me Anything ALS
Date not announcedOnline
Community-led conversations let people affected by ALS ask questions, listen, and learn from people with lived experience.
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