Parent Project Muscular Dystrophy

Care & Education Resources (guides and emergency items)Service

Free care guides and tools for Duchenne and Becker families, like a new diagnosis guide, care checklists, a steroid protocol, emergency care bundles, and DIY care binders. Many can be downloaded or ordered.

Certified Duchenne Care Center ProgramProgram

PPMD certifies care centers that meet its standards for Duchenne and Becker care. The application pages are for centers, not families.

Community Resource CenterProgram

An online collection of links and tips for children, adults, and families living with Duchenne. It has daily living resources and state-specific resources, with topics such as college, scholarships, and employment.

Decode Duchenne Carrier and Asymptomatic TestingService

Free carrier testing aimed at a known family DMD variant, for people without symptoms. A provider sends in a form, and if approved, a saliva kit is mailed to the patient.

Decode Duchenne Diagnostic TestingService

Genetic testing of the DMD gene for people with symptoms, done at the Revvity Omics lab. The program can also offer a blood test called serum CK and a wider gene panel if the first result is negative or unclear.

Decode Duchenne ProgramProgram

Free genetic testing for people in the Duchenne and Becker muscular dystrophy community who live in the United States or Canada. A local healthcare provider orders the test, and a partner lab runs it.

Duchenne Newborn Screening Action CenterProgram

Advocacy tools and state-by-state updates to support newborn screening for Duchenne.

Insurance Access & Coverage ResourcesService

Guides and sample letters to help families and providers get insurance coverage for new therapies and medical equipment like wheelchair seating. It explains steps if a request is denied.