Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy is a national nonprofit that helps people with Duchenne and Becker muscular dystrophy and their families. It offers free genetic testing through Decode Duchenne, one-to-one support, care center information, education, advocacy, research updates, and community events.
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PPMD’s Decode Duchenne genetic testing program provides free genetic testing to people in the Duchenne or Becker muscular dystrophy community. Our genetic testing includes a full analysis of the... Main Services health education disease management disease screening Serving teens children genetic disorder families low-income caregivers parents
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What they offer 10
- Not yet verified
Decode Duchenne ProgramProgram
- Recently verified· Jun 29
Decode Duchenne Diagnostic TestingService
Free genetic testing for people with a confirmed or suspected diagnosis of Duchenne or Becker muscular dystrophy.
- Recently verified· Jun 29
Decode Duchenne Carrier and Asymptomatic TestingService
Free carrier testing for eligible relatives or asymptomatic people connected to Duchenne or Becker muscular dystrophy.
- Recently verified· Jun 29
PPMD For YouService
One-to-one meetings with PPMD team members for questions about diagnosis, genetics, clinical trials, school, care, and independent living.
- Recently verified· Jun 29
Certified Duchenne Care Center ProgramProgram
PPMD certifies care centers that meet Duchenne care standards and helps families find certified centers.
- Recently verified· Jun 29
Community Resource CenterProgram
An online resource center with daily living and state-specific resources for children, adults, and families living with Duchenne.
- Recently verified· Jun 29
Duchenne Newborn Screening Action CenterProgram
Advocacy tools and state-by-state updates to support newborn screening for Duchenne.
- Recently verified· Jun 29
PPMD Monthly Carriers MeetingEvent
A virtual meeting for carriers in the PPMD community.
- Recently verified· Jun 29
Tween Trivia/Game NightEvent
A virtual trivia and game night for tweens connected to the PPMD community.
- Recently verified· Jun 29
PPMD Together | San Francisco, CAEvent
An in-person PPMD community event advertised for San Francisco.
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