Prader-Willi Syndrome Association (PWSA)
Prader-Willi Syndrome Association | USA is a national nonprofit that supports people with Prader-Willi syndrome, their families, caregivers, schools, doctors, and residential providers. It offers a 24-hour support phone line, family support, education, provider training, advocacy, support groups, and events, including a Georgia chapter contact.
Plain-language summary, written with AI
Read the full original description
The Prader-Willi Syndrome Association (PWSA) provides support to individuals diagnosed with Prader-Willi syndrome, their families, and care providers. Families count on PWSA's Family Support team... Main Services health education nutrition education parenting education understand government programs navigating the system help fill out forms support network peer support Serving all ages intellectual disability all care phases recently diagnosed genetic disorder individuals families caregivers parents
Sign in to save this to a project or list.
What they offer 11
- Recently verified· Jun 25
Family SupportService
The Family Support team provides guidance, resources, education, training, and advocacy for PWS needs across life stages.
- Recently verified· Jun 25
Family Mentor ProgramProgram
Experienced PWS family members support families of children who were newly diagnosed.
- Recently verified· Jun 25
PWSA | USA Support GroupsProgram
Private, staff-moderated Facebook groups help families connect and learn from one another.
- Recently verified· Jun 25
Provider TrainingService
PWSA | USA trains schools, residential providers, healthcare providers, and caregivers on PWS care, food security, behavior, IEPs, and nutrition.
- Recently verified· Jun 25
School Success Toolkits and Education SupportService
PWSA | USA offers school success toolkits and support around school challenges, IEPs, and behavior plans.
- Recently verified· Jun 25
Grief SupportService
PWSA | USA provides grief counseling and emotional support for people with PWS and family members.
- Recently verified· Jun 25
Building Our Social Skills (BOSS) CurriculumProgram
BOSS is a virtual social skills group curriculum for teens and adults with PWS.
- Recently verified· Jun 25
PWS Clinics DirectoryService
PWSA | USA lists Prader-Willi syndrome clinics and specialists around the country.
- Recently verified· Jun 25
Advocacy and AwarenessProgram
PWSA | USA advocates at the state and federal level and trains families to speak with policymakers.
- Recently verified· Jun 25
Move for PWSEvent
A June fundraising and awareness event where participants walk, bike, swim, run, hike, kayak, and do other activities for PWSA | USA.
- Recently verified· Jun 25
2026 Residential Providers ConferenceEvent
A gathering for residential providers to improve PWS care, share information, and build community.
Community checks
Used this organization recently? A 5-second check keeps this page honest.
Sign in to confirm this info works — every check helps the next person.
No community checks yet.
Called them? Visited? A 5-second tap below keeps this info alive for the next person.