Spina Bifida Association (SBA)
The Spina Bifida Association is a national nonprofit that helps people with Spina Bifida, their families, caregivers, and providers. Its National Resource Center answers questions in English and Spanish, helps people find clinics, chapters, support communities, local services, and health information.
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SBA’s National Information and Support Center (NISC) is dedicated to addressing questions about living with Spina Bifida. Whether an individual with Spina Bifida; individuals who have recently... Main Services health education help find healthcare navigating the system support network Serving all ages developmental disability individuals families caregivers parents
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What they offer 10
- Not yet verified
National Information and Support Center (NISC)Service
- Recently verified· Jun 28
National Resource CenterService
Provides one-on-one help with questions about living with Spina Bifida and connects people to clinics, SBA chapters, support communities, local services, specialists, and fact sheets.
- Recently verified· Jun 28
Find a ClinicService
Lists clinics in the United States that serve people with Spina Bifida, including Children’s Healthcare of Atlanta – Multispecialty Clinics.
- Recently verified· Jun 28
Find a Chapter or Support GroupService
Connects people to SBA chapters and support communities, including the Spina Bifida Association of Georgia-Tennessee listing.
- Recently verified· Jun 28
Education and TrainingProgram
Offers free virtual educational programming with medical experts, parents, and adults with Spina Bifida.
- Recently verified· Jun 28
SB-YOUProgram
Online education videos created for, about, and by adults with Spina Bifida.
- Recently verified· Jun 28
Guidelines for the Care of People with Spina BifidaProgram
Provides evidence-based care guidelines for health professionals caring for people with Spina Bifida from birth through adulthood.
- Recently verified· Jun 28
AdvocacyProgram
A virtual SBA event about inclusive play, resources, and advocacy, with more details to come.
- Recently verified· Jun 28
Walk-N-Roll for Spina BifidaEvent
A family-friendly, non-competitive one-mile fundraiser that raises awareness and funds for Spina Bifida programs, with Atlanta listed as a registration location.
- Recently verified· Jun 28
Sex and Sexuality in the Wheelchair UserEvent
A virtual education event listed by SBA for people interested in sexuality and wheelchair use.
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