National Organization for Rare Disorders (NORD)

NORD Support HelplineService

NORD’s helpline helps families find rare disease information, specialists, clinical trials, genetic counseling resources, and assistance options.

Rare Disorder Caregiver Respite ProgramProgram

This program gives financial assistance so full-time rare disease caregivers can hire short-term respite care.

Patient Assistance ProgramProgram

RareCare programs may help with medication, insurance premiums, co-pays, diagnostic testing, and travel for clinical trials or specialist visits.

Rare Disease Education Support ProgramGrant

This program may reimburse registration and limited travel or lodging costs for rare disease education programs and conferences.

NORD Resource Center and Rare Disease DatabaseService

NORD offers free rare disease reports, webinars, videos, fact sheets, and links to disease-specific organizations.

Rare Disease Centers of Excellence NetworkProgram

NORD’s Centers of Excellence network helps connect rare disease patients with medical centers focused on rare disease care and research.

Living Rare, Living Stronger Patient and Family MeetingEvent

NORD hosts forums for people with rare diseases and caregivers to learn, connect, and build community.

NORD Rare Diseases and Orphan Products Breakthrough SummitEvent

This conference brings together rare disease patients, advocates, researchers, clinicians, industry, and policy leaders to discuss treatments, research, and access.