Skip to main content
EventHealthEducationCommunity & Civic Life

Living Rare, Living Stronger Patient and Family Meeting

Offered by National Organization for Rare Disorders (NORD)

Recently verified· Jun 26From AI-assisted

NORD hosts forums for people with rare diseases and caregivers to learn, connect, and build community.

Plain-language summary, written with AI

Cost & format

free · In person or online

Schedule

  • 2026 national webinar series in summer, Spanish virtual event in October, and in-person Florida event in December; details pending.

Who this is for

People living with rare diseases, families, caregivers, and rare disease community members.

How to apply

Subscribe on the Living Rare website for updates.

Sign in to save this to a project or list.

Community checks

Called or visited recently? A 5-second check keeps this page honest.

Sign in to confirm this info works — every check helps the next person.

No community checks yet.

Called them? Visited? A 5-second tap below keeps this info alive for the next person.

Reviews

No reviews yet.

Sign in to leave a review
Living Rare, Living Stronger Patient and Family Meeting · National Organization for Rare Disorders (NORD) · ATL Care